CALL FOR CONTRIBUTIONS TO A REGISTER OF SICKLE CELL HEMOGLOBINOPATHIES
Thu, Nov 28
|REDCAP
We invite researchers on sickle cell disease (SCD) to expand the registry of sickle cell hemoglobinopathies.
Time & Location
Nov 28, 2024, 7:01 PM – Dec 15, 2024, 11:00 PM
REDCAP
About the event
ELIGIBILITY
Attend monthly online meetings starting in January 2025
Complete the REDCap registration form before December 15, 2024
Dedicate a data manager to online meetings
Having access to at least 1,000 research or healthcare records on patients with sickle cell disease (SCD)
Researchers based in the following countries are not eligible to apply: Ghana, Nigeria, Mali, Tanzania, Zimbabwe, Zambia.
(These countries were excluded because they already contribute to a multinational registry)
BENEFITS
Becoming a member of the Sickle Cell Disease Ontology Working Group (SCDO)
Networking and collaborating with other key players in sickle cell disease
Participate in future grant applications
Benefit from technical support from SADaCC
Access models on the ethical, legal and social implications
Contributing to the expansion of resources and research on sickle cell disease
COMPLETE THE REGISTRATION BY CLICKING ON THIS LINK https://redcap.h3abionet.org/redcap/surveys/?s=EYDETWWTL33CM337
CONTACT:
1. Victoria: vnembaware@gmail.com
2. Chandre: OSTCHA003@myuct.ac.za